“This is not a care home, it’s a family home. Lily is a big part of my family and the ategi Shared Lives Scheme staff have already made a big difference to my life”.
Maria remembers always having a caring nature and she joined a scheme in Cardiff in the 1980’s that asked ordinary families to offer support in their homes to older people. The scheme ended and Maria was asked to support a woman with learning disabilities called Lily (not her real name) who was introduced by a social worker before moving in with Maria and her family.
About 15 years ago Maria was told the she needed to register with the inspection unit because of the care she was providing. With little understanding of the system and no direct support Maria became a registered care home. She always included Lily in her day to day activities and her own children then grandchildren saw Lily as part of the family but after a while the regulatory requirements placed more and more demands on Maria because the rules around the provision of registered care did not differentiate between large, staffed Care Homes and small ordinary family homes like Maria’s. She had to provide a separate area for Lily to eat her meals and had to create a separate sitting area even though Lily preferred to eat and socialise with Maria, her family and friends. She felt very isolated and became increasingly challenged because her house did not meet the requirements of a registered care home. No one questioned Maria’s ability to support Lily but she felt that she was inspected but had no support or guidance leaving her to feel under great pressure and stress.
Maria has been assessed and approved by the ategi Shared Lives Scheme and is now an Approved Shared Lives Carer. The ategi Shared Lives Scheme is registered with CSSIW in Wales which means that Maria has a named team member who supports her to provide support to Lily within the regulatory requirements. There is a clear agreement about her support role but also about what support she will get from the scheme. Maria and Lily get together with their scheme worker and a care manager regularly to make sure that things are going well and that Maria and Lily are happy with the arrangements.
Maria is absolutely delighted because she now has the opportunity to meet other Shared Lives Carers; she is able to attend training with ategi and is helping Lily to be matched and introduced to another Shared Lives Carer so that they can both have occasional breaks from each other. Maria still goes on holiday with Lily and they continue their full and happy lifestyle together. She now feels she has the support and back up from the Shared Lives Team and though she recognises the need for her role to be monitored she believes she is part of an organisation that shares her values and who will be there to support her in her role.
Maria feels so much more positive about the situation for her and Lily. She says, “This is not a care home, it’s a family home. Lily is a big part of my family and the ategi Shared Lives Scheme staff have already made a big difference to my life”.